My 6-month-old son was just diagnosed with severe cerebral palsy at our Louisville hospital, and I know very little about the condition or available resources. Can you point me in the right direction to find the information I need?

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There are a number of resources that offer information and resources for parents of children with cerebral palsy (CP). You can find information on causes, medical and therapy practitioners, medications, assistive devices, etc., etc. Here are just a few places that you should check out:

  • MyChild at CerebralPalsy.org. This website claims to be “the ultimate resource for everything cerebral palsy.” They have a call center available to parents and caregivers, which will provide non-legal information and resources. There is also a community blog, through which you can read tips, inspirational stories, and share information.
  • United Cerebral Palsy. UCP provides a number of helpful tools, including a “one-stop resource guide” that can point you to providers of health care, home modifications, financial assistance, or other needs.
  • Reaching for the Stars. This website contains a regularly updated resource center, as well as a list of both U.S. and international CP resources. There is also an interesting list of adaptive sports, recreation, and camps for children with disabilities, complete with links to further information.

A child with cerebral palsy costs parents a lot in terms of time, emotional strain, and money. Shouldn’t the party responsible for your child’s CP help pay the bills?

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